How to Involve Consumers in Health and Medical Research
A step-by-step guide for organisations, researchers, consumers and funders.
About This Course
CCI refers to consumer and community involvement in health and medical research. Consumer refers to someone who has lived experience of an illness, either as a patient or carer.
Health and medical research is strengthened by the involvement of people with lived experience of a health condition and/or the health system. This course recognises four stakeholders in the Consumer Involvement ecosystem: Organisations, Researchers, Consumers and Funders and features four modules, one for each stakeholder group.
While each module can be completed individually, it is recommended to complete all four for a comprehensive understanding.
This course will provide:
- an understanding of the importance and benefits of involving consumers in health research
- an appreciation of the roles and obligations of organisations, researchers, consumers and funders for successful consumer involvement
- the knowledge and skills for embedding and sustaining consumer involvement in all areas of your research
This course accompanies:
- the CCI Handbook, a step-by-step guide
- the CCI Audit Tool, a self-help resource for assessing the extent and nature of CCI in an organisation and/or project
Pricing
Free
WAHTN Partners have free access to this course
Free
Participants from the AHRA partner organisations have discounted access to this course.
Free
Any person from the public can gain access to the course.
Course Objectives
Organisations
This module provides a step-by-step guide for embedding Consumer Involvement in organisational culture, policy, strategy and operations.
Researchers
This module will assist researchers to:
Recruit the right and best consumers for their research activities.
Maximise the benefits of Consumer involvement in every phase of their research.
Consumers
This module will assist consumers to optimise their involvement in research by being:
Well-informed and well-prepared
Competent and confident in their capacity to contribute meaningfully.
Funders
This module provides funders with a step-by step guide for embedding Consumer Involvement in their funding priorities, policies, programs, strategies, and translation.
Feedback From Participants
"This course is essential for all those who are serious about involving consumers in health and medical research."
"This resource has been developed though the collaboration between research organisation, researchers, and consumers. It provides guidance and great tips if you are considering becoming involved in health research."
"I encourage funders to involve consumers in their funding programs. This is a great resource that gives top tips for embedding consumer involvement in all aspects of funding activities."
"We need to work with those most impacted by our research. This resource provides a readily accessible guide to move the concept of consumer involvement to an operational reality."
"This resource gives a really good starting point for those researchers who are new to consumer Involvement, and there are great new ideas for those of us already involving consumers in our work."
